Which of the following statements is/are correct with reference to the “National Policy for Rare Diseases 2021”?
A. The National Consortium to be set up to lower the high cost of treatment for rare diseases with increased focus on indigenous research.
B. The Centre of Excellence to promote tertiary health care will be provided one-time financial support of up to Rs 5 crores.
C. It envisages creation of a national hospital-based registry of rare diseases.
D. All of these
Explanation:
Union Health & Family Welfare Minister approved the “National Policy for Rare Diseases 2021” on 30th March 2021. The policy document has been uploaded on the website of Ministry of Health & Family Welfare. The National Consortium to be set up to lower the high cost of treatment for rare diseases with increased focus on indigenous research. Policy also aims to strengthen tertiary health care facilities for prevention and treatment of rare diseases through designating 8 health facilities as Centre of Excellence and these CoEs will also be provided one-time financial support of up to Rs 5 crores for upgradation of diagnostics facilities. It envisages creation of a national hospital-based registry of rare diseases.
